Tom was discharged on Friday evening - just six hours after our "what if" meeting with the Palliative Conference gang. They like to scare your pants off - the chaplain is the ring leader - and then send you home. Just kidding, they are a nice group of people.
Everything just seems so bizarre as far as Tom's condition. There seems to be no real consensus among physicians. There are so many of them and they each seem to have ever-changing synopses of Tom's condition. Here is a list of people "tending" to Tom: primary care physician, bone marrow transplant physician, neurologist, cardiologist, gastrointerologist, physical therapist, nutritionist, and of course there's me and I know it all.
One physician says he has a clot in his heart and then a few hours later a different physician tells us that the most recent MRI showed no sign of a blood clot. Another physician tells us that Tom may have an infection in his brain, and still another physician says everything looks fine. Now he has signs of diabetes because of the insulin he's getting to counteract a high-dose steroid. It's all crazy! I don't understand it all.
None of them realize just how poorly Tom walks, because he was in a hospital bed the whole time and they couldn't see him in motion. He still can't walk without someone really supporting him, and I believe it's gotten worse - his feet function like seal flippers. I'm so thankful that his mind is funtioning normally though.
Tom believes that he is taking an unnecessary amount of pills. He's taking two different pills for high blood pressure (which is a new diagnosis, by the way), and two different antifungal prescriptions. It makes us wonder if one physician knows what another physician has prescribed. Our pharacist warned me about mixing two of the prescriptions, but the doctor I consulted about this said there was no concern. I believe pharmacists are a little more knowledgable than physicians when it comes to analyzing drug interactions.
With all that being said, there are always things to be thankful for:
1) being at home, 2) having lots of family close by, 3) having lots of concerned friends, especially the Stuarts who continue to go above and beyond by helping us with Katie, many times "at the drop of a hat", 4) having excellent health care insurance, and 5) LIFE!