It's been very difficult obtaining answers from the doctors. I ask the same questions of each specialty physician and get vague answers. I wish I could get together with them all in a pow-wow and ask questions. I wonder if they would try and speak over one another, or if they would look at each other with raised eyebrows waiting for someone else to answer. My questions are mostly pinpointed toward his brain. I want to know what the white spots are that were detected on the MRI, if they are dangerous, what caused them. I want to know if the swelling has decreased. I want to know why he keeps having these olfactory deja vu sensations. He smells things - imaginary scents - that remind him of his past as far back as 35 years.
Tom's transplant doctor stopped in for a visit today. He wanted to see how Tom is walking, if he has improved. He wasn't pleased, therefore he will not release Tom for a few more days. He said that it's too risky for him to try and get around on his own at home. You should have seen the look on Tom's face - oh, he was sooo bummed out.
The doctor is ordering a spinal tap to take place today or tomorrow. They have already extracted spinal fluid from the region around his brain through the Ommaya reservior on the top of his head, but that showed nothing of concern. A spinal tap will be way more thorough and allow them to rule out anything. They are baffled.
The neurologist will be visiting sometime today. I hope I am still here because I have many questions written down. This is the doctor that I most want to see.
Tom is EXTREMELY disturbed about being on disability pay once again. He is grateful to have the option but he is still hesitant to believe that it was a necessary process. He feels that the communication wasn't there in the capacity that it should have been in order to make things work. His employers say that his memory was a problem and holding up projects. I really don't know, as I'm obviously not a part of that circle. I can understand how frustrated both sides must be (not to mention a bit saddened), but I lean more toward the side of his employers. His memory is a problem. They have been so patient with him and continue to stand behind him. They are truly one of a kind and Tom certainly does recognize that. Ultimately, he's just frustrated with himself.
2 comments:
Hang in there guys! Lisa, can you not call the stinkin' doctor's office and tell them that you need to see them???? I hope you get to see the nuerologist today, also. Those guys seem to have a good grasp on things in most cases. Of course Tom is special, he's not your run of the mill case. It's amazing that he has all the doctor's kind scratching their heads. Then again, are the doctors holding back? I can imagine this is very hard for you to deal with and I wish I could do something to make it easier. Tell Tom I'm thinking about him and I'll call later.
Love ya'll
Love,
Elise
That all sucks. I think about the three of you constantly. I know Tom must be frustrated. This too shall pass.
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