Sunday, August 31, 2008

Here we go again

Tom's tremors have worsened and he is unsteady on his feet - even with the walker. He's sleeping a lot and reaching for imaginary things in the air. He feels nauceous. I feel like a robot writing all this again and you probably do while reading it. When is this merry-go-round going to stop?

Last night he freaked Katie and me out at the dinner table - he was talking about something and his right eye kept looking off to the right as his left eye remained forward. He told us that he is going to die. Not a very pleasant family dinner.

7 comments:

friendlymentor said...

Lisa,
This is delusional stuff. You may need to get him back to the hospital if this gets any worse. They have at least one of their medications wrong that is affecting his cognitive powers. Call us if you need us, no matter what time of the day or night.
Sometime in the next day or so you are supposed to get the results of Tom's extraction, yes? He needs some reassurance that things are going better. Those tremors seem like the result of the wrong medicines or interactions. Call us when you need us, don't hesitate.
R&N

wiizii said...

Lisa,
I agree with Richard. This has got to be related to the meds and some kind of chemical interaction. Please urge Tom to go to the hospital as soon as possible so testing can begine to resolve the situation.
Love ya!
Elise

Unknown said...

OMG Lisa. Stay strong. Tell Tom that we are all thinking and praying about him. He means so much to so many people.

Erin Hill said...

I would put on my most agressive hat and light a fire under as many peoples as*** that I could. I know you have been agressive but maybe it is time to be a big B**** and demand some answers....you know, be the very loud squeaky wheel. You can borrow my broom if you need to fly around and scare some folks. All kidding aside, I will pray and help keep Tom's outlook UP. And you can still borrow my broom.
Love, Erin

Spirit Wood Turner said...

Lisa,
A lot of power at work here, I can feel it. We're constantly sending affirmations to Tom and you and Katie. You have been so strong, just a little while longer. I wish I could do more. I guess it's a similar feeling to what you might be feeling these days.

Bless you all,
Dale

Chris - 9of 9 said...

Hey Lisa, Tom and Katie

I will continue to keep ya'll in my thoughts and prayers.

Love,
Chris

jadiec said...

Lisa,
I can't imagine how terrifying and difficult this is for you, Tom, and Katie. I know you are working unbelievably hard to take care of them and to take everything in and make the best decisions possible from everything you've learned and experienced and what you know of Tom's strength and resolve. Every post I read and prayer I send, I get a glimpse of what you're going through, but I truly don't know how lonely and frustrating this must be. If I could shoulder your burden for even five seconds...

I know you are Tom's greatest advocate. I saw that in the hospital when we were talking "food" with Tom and his nurse. You are grace under pressure and the perfect foil for Tom and his doctors. Please let us know what the doctors say. We love you. So many prayers...

Jessica