It's day four at the BMT clinic. Tom and I are sitting in our little 6x6 space. He's listening to his Ipod - I can't tell if he's sleeping or not. I'm watching tv with the headphones on while I type.
It's 10am and we have about 4.5 more hours. I'm so glad it's rainy outside today because it really stinks looking out the huge window in front of us on a beautiful sunny day.
Katie's been spending lots of time with her friends - sleepovers are really popular right now so that's convenient. She recently went out of town with a couple of sisters and had a blast. We sometimes invite her friends over to swim in our neighborhood pool but the problem is that we have to take them back home immediately when they are all finished playing because we aren't allowed to have any "outsiders" in our house for 100 days.
Tom hasn't eaten at all in five days. Before that he was able to eat about 1/2 cup of yogurt for the entire day. He can't even keep his pills down half the time. He weighs 144 lbs.
He fell last night when he came back to bed after using the bathroom. He didn't hurt himself but it sure scared us. I didn't know what to expect when I turned on the light. He fell and crushed the side of a small metal trash can. Now I get up and escort him to the bathroom and back to bed whenever he needs to get up in the middle of the night. He is so unsteady on his feet!
On a funny note - he's looking a lot like Fred Flintstone's boss, Mr. Slate, with his bald head and black-rimmed glasses. The only difference is that Tom is skinny (and handsome). I'll post a photo tomorrow.